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Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study
2020,
- HE Léonard de Vinci
,
- Article scientifique
Article scientifique
Objective: To assess the face and content validity, acceptability and feasibility of a French version of the Children’s Palliative Outcome Scale (CPOS). Background: Instruments in French used to measure outcomes in pediatric palliative care are lacking. Methods: After forward-backward translation of the 12-item English CPOS to French, we conducted a qualitative pilot study. During semi structured ...
Appropriate care at the end of life
22 décembre 2017,
- HE Léonard de Vinci
,
- Article scientifique
Article scientifique
Rapport du KCE sur les conditions de soins du patient en fin de vie
Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014
2018,
- HE Léonard de Vinci
,
- Article scientifique
Article scientifique
BACKGROUND: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's implementation is challenging. In Belgium, five paediatric liaison teams (PLTs) deliver palliative care. A Royal Decree issued in 2010 provides the legal framework that defines the PLTs' missions, as ensuring continuity of curative and palliative care between ...
Recensement d'un nombre d'enfants atteints d'une maladie chronique complexe en région de Bruxelles-Capitale (rapport final)
2018,
- HE Léonard de Vinci
,
- Article scientifique
Article scientifique
Rapport et recensement du nombre d'enfants atteints de MCC en région Bruxelles-Capitale.
Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review
2019,
- HE Léonard de Vinci
,
- Article scientifique
Article scientifique
Pediatric palliative care (PPC) is intended to promote children's quality of life by using a family-centered approach. However, the measurement of this multidimensional outcome remains challenging. To review the instruments used to assess the impact of PPC interventions. Five databases (Embase, Scopus, The Cochrane Library, PsychInfo, Medline) were searched. Inclusion criteria were as follows: ...
Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgium
2019,
- HE Léonard de Vinci
,
- Article scientifique
Article scientifique
Paediatric complex chronic conditions (CCCs) are life-limiting conditions requiring paediatric palliative care, which, in Belgium, is provided through paediatric liaison teams (PLTs). Like the number of children and adolescents with these conditions in Belgium, their referral to PLTs is unknown. Objectives: The aim of the study was to identify, over a 5-year period (2010–2014), the number of children ...
Quel accès aux soins palliatifs pour les enfants porteurs d'une maladie chronique complexe en Belgique?
2020,
- HE Léonard de Vinci
,
- Article scientifique
Article scientifique
Les maladies chroniques complexes (MCC) sont définies comme étant des conditions médicales avec une atteinte systémique sévère, nécessitant le recours à des hospitalisations pédiatriques et limitant l’espérance de vie (Feudtner et al., 2000). Une étude européenne (Håkanson et al., 2017) suggère que plus d’un tiers des enfants décédés en Belgique en 2008 l’étaient à cause de MCC. Les recommandations ...