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Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgium

dc.rights.licenseCC6en_US
dc.contributor.authorFriedel, Marie
dc.contributor.authorGilson, Aurélie
dc.contributor.authorBouckenaere, Dominique
dc.contributor.authorBrichard, Bénédicte
dc.contributor.authorFonteyne, Christine
dc.contributor.authorWojcik, Thomas
dc.contributor.authorDe Clercq, Etienne
dc.contributor.authorGuillet, Alain
dc.contributor.authorMahboub, Alaa
dc.contributor.authorLahaye, Magali
dc.contributor.authorAujoulat, Isabelle
dc.date.accessioned2021-06-14T09:17:32Z
dc.date.available2021-06-14T09:17:32Z
dc.date.issued2019
dc.identifier.issn2399-9772en_US
dc.identifier.urihttps://luck.synhera.be/handle/123456789/1055
dc.identifier.doihttps://doi.org/10.1136/bmjpo-2019-000547en_US
dc.description.abstractPaediatric complex chronic conditions (CCCs) are life-limiting conditions requiring paediatric palliative care, which, in Belgium, is provided through paediatric liaison teams (PLTs). Like the number of children and adolescents with these conditions in Belgium, their referral to PLTs is unknown. Objectives: The aim of the study was to identify, over a 5-year period (2010–2014), the number of children and adolescents (0–19 years) living with a CCC, and also their referral to PLTs. Methods: International Classification of Disease codes (ICD-9) corresponding to a CCC, as described by Feudtner et al, and national registration numbers were extracted from the databases of all hospitals (n=8) and PLTs (n=2) based in the Brussels region. Aggregated data and pseudonymised national registration number were transmitted to the research team by a Trusted Third Party (eHealth). Ages and diagnostic categories were calculated using descriptive statistics. Results: Over 5 years (2010–2014) in the Brussels region, a total of 22 721 children/adolescents aged 0–19 years were diagnosed with a CCC. Of this number, 22 533 were identified through hospital registries and 572 through PLT registries. By comparing the registries, we found that of the 22 533 children/adolescents admitted to hospital, only 384 (1.7%) were also referred to a PLT. Conclusion: In Belgium, there may be too few referrals of children and adolescents with CCC to PLTs that ensure continuity of care.en_US
dc.description.sponsorshipOTHen_US
dc.language.isoENen_US
dc.publisherBMJen_US
dc.relation.ispartofBMJ Paediatrics Openen_US
dc.rights.urihttps://dial.uclouvain.be/pr/boreal/fr/object/boreal%3A220225/datastreamsen_US
dc.subjectPédiatrieen_US
dc.subjectMaladie chronique complexe (MCC)en_US
dc.subjectEnfantsen_US
dc.subjectAdolescentsen_US
dc.subjectHôpitalen_US
dc.subjectSoins palliatifsen_US
dc.subjectAccès aux soinsen_US
dc.subject.enPediatric palliative careen_US
dc.subject.enComplex chronic conditionsen_US
dc.titleAccess to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgiumen_US
dc.typeArticle scientifiqueen_US
synhera.classificationSciences de la santé humaine>>Pédiatrieen_US
synhera.classificationSciences de la santé humaine>>Anesthésie & soins intensifsFR
synhera.institutionHE Léonard de Vincien_US
synhera.otherinstitutionUCL - Université Catholique de Louvainen_US
dc.description.versionOuien_US
dc.rights.holderBMJen_US


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