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Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014

dc.rights.licenseCC6en_US
dc.contributor.authorFriedel, Marie
dc.contributor.authorBrichard, Bénédicte
dc.contributor.authorFonteyne, Christine
dc.contributor.authorRenard, Marleen
dc.contributor.authorMisson, Jean-Paul
dc.contributor.authorVandecruys, Els
dc.contributor.authorTonon, Corinne
dc.contributor.authorVerfaillie, Françoise
dc.contributor.authorHendrijckx, Georgette
dc.contributor.authorAndersson, Nathalie
dc.contributor.authorRuysseveldt, Ilse
dc.contributor.authorMoens, Katrien
dc.contributor.authorDegryse, Jean-Marie
dc.contributor.authorAujoulat, Isabelle
dc.date.accessioned2021-06-14T10:00:23Z
dc.date.available2021-06-14T10:00:23Z
dc.date.issued2018
dc.identifier.issn1472-684Xen_US
dc.identifier.urihttps://luck.synhera.be/handle/123456789/1058
dc.identifier.doihttps://doi.org/10.1186/s12904-018-0324-2en_US
dc.description.abstractBACKGROUND: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's implementation is challenging. In Belgium, five paediatric liaison teams (PLTs) deliver palliative care. A Royal Decree issued in 2010 provides the legal framework that defines the PLTs' missions, as ensuring continuity of curative and palliative care between the hospital and home for children diagnosed with life-limiting conditions. This national study describes how PLTs ensure continuity of care by describing their activities and the characteristics of the children they cared for from 2010 to 2014. METHODS: Thematic analysis of open-ended questions was performed and descriptive statistics of aggregated data issued from annual reports, collected by the Belgian Ministry of Public Health through the Cancer Plan was used. A review panel of PLT members discussed the results and contributed to their interpretation. RESULTS: Between 2010 and 2014, 3607 children and young adults (0-21 years) were cared for by the 5 Belgian PLTs (mean of 721/per year). Of these children, 50% were diagnosed with an oncological disease, 27% with a neurological or metabolic disease. Four hundred and twenty eight (428) children had died. For 51% of them, death took place at home. PLT activities include coordination; communication; curative and palliative care; education; research and fundraising. Different perceptions of what constitutes a palliative stage, heterogeneity in reporting diagnosis and the current lack of specific valid indicators to report PPC activities were found. CONCLUSION: PLTs are offering highly individualised, flexible and integrated care from diagnosis to bereavement in all care settings. Improvements in data registration and implementation of outcome measures are foreseen.en_US
dc.description.sponsorshipOTHen_US
dc.language.isoENen_US
dc.publisherBioMed Central Ltden_US
dc.relation.ispartofBMC Palliative Careen_US
dc.relation.isreferencedbyFriedel, M., Gilson, A., Bouckenaere, D., Brichard, B., Fonteyne, C., Wojcik, T., De Clercq, E., Guillet, A., Mahboub, A., Lahaye, M., & Aujoulat, I. (2019). Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgium. BMJ paediatrics open, 3(1), e000547. https://doi.org/10.1136/bmjpo-2019-000547en_US
dc.rights.urihttps://dial.uclouvain.be/pr/boreal/fr/object/boreal%3A198432/datastreamsen_US
dc.subjectAdolescentsen_US
dc.subjectAdultesen_US
dc.subjectSoins palliatifsen_US
dc.subjectRelations interpersonnellesen_US
dc.subjectPsychologieen_US
dc.subjectPédiatrieen_US
dc.subjectEnfantsen_US
dc.subject.enAdolescentsen_US
dc.subject.enChildrenen_US
dc.subject.enAdultsen_US
dc.subject.enPediatric palliative careen_US
dc.subject.enPsychologyen_US
dc.subject.enInterpersonal relationsen_US
dc.subject.enInterprofesionnal relationsen_US
dc.subject.enPatient Care Teamen_US
dc.titleBuilding Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014en_US
dc.typeArticle scientifiqueen_US
synhera.classificationSciences de la santé humaine>>Pédiatrieen_US
synhera.institutionHE Léonard de Vincien_US
synhera.otherinstitutionUCL - Université Catholique de Louvainen_US
dc.description.versionOuien_US
dc.rights.holderBioMed Central Ltd.en_US


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