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The Belgian euthanasia law and its impact on the practises of Belgian paediatric palliative care teams
2018, Friedel, Marie; De Terwangne, Brigitte; Brichard, Bénédicte; Ruysseveldt, Ilse; Renard, Marleen, HE Léonard de VinciArticle scientifiqueThis commentary describes the effect of the Belgian euthanasia law extended to children law on the practices of two paediatric liaison care teams in Belgium (one in Flanders, one in Wallonia). Ethical challenges are discussed based on clinical experiences of those teams, who affirm that in 25 years of practice, they were never confronted with a child requesting euthanasia. -
Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study
2020, Friedel, Marie; Brichard, Bénédicte; Boonen, Sabine; Tonon, Corinne; De Terwangne, Brigitte; Bellis, Dominique; Mevisse, Murielle; Fonteyne, Christine; Jaspard, Maud; Schruse, Marie; Harding, Richard; Downing, Julia; Namisango, Eve; Degryse, Jean-Marie; Aujoulat, Isabelle, HE Léonard de VinciArticle scientifiqueObjective: To assess the face and content validity, acceptability and feasibility of a French version of the Children’s Palliative Outcome Scale (CPOS). Background: Instruments in French used to measure outcomes in pediatric palliative care are lacking. Methods: After forward-backward translation of the 12-item English CPOS to French, we conducted a qualitative pilot study. During semi structured ...