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    • Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014Peer reviewedClosed access 

      2018, Friedel, Marie; Brichard, Bénédicte; Fonteyne, Christine; Renard, Marleen; Misson, Jean-Paul; Vandecruys, Els; Tonon, Corinne; Verfaillie, Françoise; Hendrijckx, Georgette; Andersson, Nathalie; Ruysseveldt, Ilse; Moens, Katrien; Degryse, Jean-Marie; Aujoulat, Isabelle, HE Léonard de Vinci
      Article scientifique
      BACKGROUND: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's implementation is challenging. In Belgium, five paediatric liaison teams (PLTs) deliver palliative care. A Royal Decree issued in 2010 provides the legal framework that defines the PLTs' missions, as ensuring continuity of curative and palliative care between ...

    • Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot StudyPeer reviewedClosed access 

      2020, Friedel, Marie; Brichard, Bénédicte; Boonen, Sabine; Tonon, Corinne; De Terwangne, Brigitte; Bellis, Dominique; Mevisse, Murielle; Fonteyne, Christine; Jaspard, Maud; Schruse, Marie; Harding, Richard; Downing, Julia; Namisango, Eve; Degryse, Jean-Marie; Aujoulat, Isabelle, HE Léonard de Vinci
      Article scientifique
      Objective: To assess the face and content validity, acceptability and feasibility of a French version of the Children’s Palliative Outcome Scale (CPOS). Background: Instruments in French used to measure outcomes in pediatric palliative care are lacking. Methods: After forward-backward translation of the 12-item English CPOS to French, we conducted a qualitative pilot study. During semi structured ...