• Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, BelgiumPeer reviewedClosed access 

      2019, Friedel, Marie; Gilson, Aurélie; Bouckenaere, Dominique; Brichard, Bénédicte; Fonteyne, Christine; Wojcik, Thomas; De Clercq, Etienne; Guillet, Alain; Mahboub, Alaa; Lahaye, Magali; Aujoulat, Isabelle, HE Léonard de Vinci
      Article scientifique
      Paediatric complex chronic conditions (CCCs) are life-limiting conditions requiring paediatric palliative care, which, in Belgium, is provided through paediatric liaison teams (PLTs). Like the number of children and adolescents with these conditions in Belgium, their referral to PLTs is unknown. Objectives: The aim of the study was to identify, over a 5-year period (2010–2014), the number of children ...
    • Analyser une situation difficile avec l'éthique du carePeer reviewedClosed access 

      2019, BERT, Catherine, HE Léonard de Vinci
      Article scientifique
      Réflexions à partir d'un travail réalisé par les étudiantes et les étudiants en anesthésie et en soins périopératoires du Parnasse-lSEI (HE Vinci).
    • Appropriate care at the end of lifePeer reviewedClosed access 

      22 décembre 2017, Van den Broeck, Kris; Schmitz, Olivier; Aujoulat, Isabelle; Mistiaen, Patriek; Friedel, Marie; Genet, Magalie; Ricour, Céline; Kohn, Laurence; Wens, Johan, HE Léonard de Vinci
      Article scientifique
      Rapport du KCE sur les conditions de soins du patient en fin de vie
    • Belgian End-Of-Life Care Study Did Not Include French-speaking UnitsPeer reviewedClosed access 

      2020, Friedel, Marie; Renard, Marleen; Devlieger, Hugo; Verellen, Gaston, HE Léonard de Vinci
      Article scientifique
      Dear Editors, We have read with interest the article by Dombrecht et al. (2019) published in your journal in its edition of March 2019. The authors address a sensitive topic, namely the reported attitudes of neonatologists and neonatal nurses in the Flanders region of Belgium regarding complex issues around active end-of-live (EOL) practices for foetuses and neonates facing life-limiting conditions. ...
    • The Belgian euthanasia law and its impact on the practises of Belgian paediatric palliative care teamsPeer reviewedClosed access 

      2018, Friedel, Marie; De Terwangne, Brigitte; Brichard, Bénédicte; Ruysseveldt, Ilse; Renard, Marleen, HE Léonard de Vinci
      Article scientifique
      This commentary describes the effect of the Belgian euthanasia law extended to children law on the practices of two paediatric liaison care teams in Belgium (one in Flanders, one in Wallonia). Ethical challenges are discussed based on clinical experiences of those teams, who affirm that in 25 years of practice, they were never confronted with a child requesting euthanasia.
    • BelgiquePeer reviewedClosed access 

      2014, Filion, Nathalie, HE Léonard de Vinci
      Article scientifique
      En Belgique, deux diplômes différents permettent d’exercer l’art infirmier : le bachelier en soins infirmiers et le brevet infirmier. Bien que nous enseignions des notions de sciences infirmières dans le cursus de base, l’appellation officielle est bachelier en « soins infirmiers ».
    • Bioéthique et droit à la santé : un enjeu universelPeer reviewedClosed access 

      juin 2009, BERT, Catherine, HE Léonard de Vinci
      Article scientifique
      Droit à la santé et bioéthique n’ont pas d’emblée été associés. La bioéthique est apparue quelques dizaines d’années après l’élaboration des premières revendications juridiques internationales en matière de santé. On peut néanmoins considérer que la démarche bioéthique constitue un apport précieux pour le droit à la santé en élargissant ce dernier à un champ de réflexion de plus en plus riche et ...
    • Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014Peer reviewedClosed access 

      2018, Friedel, Marie; Brichard, Bénédicte; Fonteyne, Christine; Renard, Marleen; Misson, Jean-Paul; Vandecruys, Els; Tonon, Corinne; Verfaillie, Françoise; Hendrijckx, Georgette; Andersson, Nathalie; Ruysseveldt, Ilse; Moens, Katrien; Degryse, Jean-Marie; Aujoulat, Isabelle, HE Léonard de Vinci
      Article scientifique
      BACKGROUND: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's implementation is challenging. In Belgium, five paediatric liaison teams (PLTs) deliver palliative care. A Royal Decree issued in 2010 provides the legal framework that defines the PLTs' missions, as ensuring continuity of curative and palliative care between ...
    • Choix autonome et prise de risque : comprendre ce qui compte vraimentPeer reviewedClosed access 

      2017, BERT, Catherine, HE Léonard de Vinci
      Article scientifique
      Comment comprendre les choix autonomes qui menacent une vie ? Quel sens leur donner ? Spontanément, de tels choix sont volontiers qualifiés de choix irrationnels ou de choix incohérents. On comprend -voire on accepte- difficilement les prises de risque dans le domaine de la santé très probablement parce qu'elles s'inscrivent en marge d'une échelle de valeurs qui privilégie la préservation de la ...
    • Des soins palliatifs intégrésPeer reviewedClosed access 

      2017, Friedel, Marie, HE Léonard de Vinci
      Article scientifique
      Symposium EAPC sur la démarche palliative intégrée.
    • Does the Belgian law legalising euthanasia for minors really address the needs of life-limited children?Peer reviewedClosed access 

      2014, Friedel, Marie, HE Léonard de Vinci
      Article scientifique
      The Belgian law on euthanasia for adults was approved in 2002, the same year as laws on patients’ rights and on palliative care, which mostly address the needs of adults. On 13 February 2014, an extension of the euthanasia law that decriminalises euthanasia for children, without age restriction, was approved by the House of Representatives in Brussels (Belgian Ministry of Justice, 2014). In the ...
    • Efficacy of the Buzzy System for pain relief during venipuncture in children: a randomized controlled trialPeer reviewedClosed access 

      2018, Volkan, Susam; Friedel, Marie; Basile, Patrizia; Bonetti, Loris, HE Léonard de Vinci
      Article scientifique
      Background and aim of the work: procedural pain is a significant issue for paediatric patients. In particular, needle pain is amongst the most stressful for children. Studies revealed that a large number of children do not receive adequate pain prevention during the procedures. Neglecting the prevention of needle pain can cause several psychological effects such as anxiety and phobias, and increase ...
    • Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot StudyPeer reviewedClosed access 

      2020, Friedel, Marie; Brichard, Bénédicte; Boonen, Sabine; Tonon, Corinne; De Terwangne, Brigitte; Bellis, Dominique; Mevisse, Murielle; Fonteyne, Christine; Jaspard, Maud; Schruse, Marie; Harding, Richard; Downing, Julia; Namisango, Eve; Degryse, Jean-Marie; Aujoulat, Isabelle, HE Léonard de Vinci
      Article scientifique
      Objective: To assess the face and content validity, acceptability and feasibility of a French version of the Children’s Palliative Outcome Scale (CPOS). Background: Instruments in French used to measure outcomes in pediatric palliative care are lacking. Methods: After forward-backward translation of the 12-item English CPOS to French, we conducted a qualitative pilot study. During semi structured ...
    • Functional Bladder and Bowel Problems: How to Treat Them?Peer reviewedOpen access 

      04 février 2018, BAKKER, Els; Segers N; Claes M,; Palinckx A,, HE Léonard de Vinci
      Article scientifique
      In order to achieve urinary and faecal continence an efficient control on both systems is necessary, which means equilibrium between the two important phases of each system: storage and emptying. This implicates not only control of the pelvic floor muscles (contraction and relaxation) but also a correct interpretation of the sensorial information during both functional alternative phases leading ...
    • Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic ReviewPeer reviewedClosed access 

      2019, Friedel, Marie; Aujoulat, Isabelle; Dubois, Anne-Catherine; Degryse, Jean-Marie, HE Léonard de Vinci
      Article scientifique
      Pediatric palliative care (PPC) is intended to promote children's quality of life by using a family-centered approach. However, the measurement of this multidimensional outcome remains challenging. To review the instruments used to assess the impact of PPC interventions. Five databases (Embase, Scopus, The Cochrane Library, PsychInfo, Medline) were searched. Inclusion criteria were as follows: ...
    • La formation en éthique. Enjeux et pertinence auprès d'étudiants dans le domaine des soins de santéPeer reviewedClosed access 

      juillet 2013, BERT, Catherine, HE Léonard de Vinci
      Article scientifique
      La sensibilisation à la démarche de questionnement éthique comporte différents enjeux liés à la conception du bon soin. Ceux-ci amènent notamment à une réflexion sur le savoir, sur la place de la technique mais aussi sur les pratiques de soin. La portée de cette démarche vise d’une part la responsabilité humaine et morale du futur soignant et d’autre part la dimension politique de la pratique ...
    • La qualité de vie des enfants en contexte palliatif, comment la documenter? Peut-on la mesurer?Peer reviewedClosed access 

      2019, Friedel, Marie, HE Léonard de Vinci
      Article scientifique
      Les soins palliatifs pédiatriques visent à promouvoir la meilleure qualité de vie des enfants. Cependant, mesurer cette qualité de vie, qui est un construit hautement subjectif et multidimensionnel, est complexe car il faut tenir compte de l’hétérogénéité des maladies, des âges, des trajectoires de soins ainsi que des types d’interventions. Actuellement, la plupart des instruments de mesure ne ...
    • Le corps humain, un bien de consommation ?Peer reviewedClosed access 

      1997, BERT, Catherine, HE Léonard de Vinci
      Article scientifique
      Article sur l'éthique médicale et le droit du patient en soins de santé.
    • Le système politique belge et la gestion des questions éthiques. Le cas de l'euthanasiePeer reviewedClosed access 

      2007, Schiffino, Nathalie; BERT, Catherine, HE Léonard de Vinci
      Article scientifique
      La loi du 28 mai 2002 dépénalisant l’euthanasie place la Belgique dans une situation exceptionnelle par rapport à la plupart des autres démocraties occidentales. Cette contribution montre quels traits majeurs du système politique belge permettent d’expliquer l’adoption de décisions publiques autorisant le dépassement de seuils normatifs à propos des enjeux éthiques qui impliquent des comportements ...
    • Please Do Whatever It Takes to End Our Daughter's Suffering!Peer reviewedClosed access 

      2015, Clément de Cléty, Stéphan; Friedel, Marie; Verhagen, A. A. Eduard; Lantos, John D.; Carter, Brian S., HE Léonard de Vinci
      Article scientifique
      What is the best way to care for a child with severe neurologic impairment who seems to be dying and is in intractable pain? Can we give sedation as we remove life support? Is it ethically permissible to hasten death? In the United States, 5 states have legalized assisted suicide (although only for competent adults). In Belgium and the Netherlands, euthanasia is legal for children under some ...