SANTÉ: Recent submissions
Voici les éléments 41-60 de 60
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L'art de faire dans de la dentelle. Des soins palliatifs en périnatalogie.
2016, HE Léonard de VinciActe de conférence ou de colloqueDurant ce symposium, des exposés issus de perspectives interdisciplinaires variées furent entendus : Des néonatologues, un pédopsychiatre, une psychologue, un éthicien et des infirmières néonatales ont partagé leurs doutes, leurs cheminements en partant de leurs expériences cliniques. -
Face and Content Validity, Acceptability, and Feasibility of the Adapted Version of the Children's Palliative Outcome Scale: A Qualitative Pilot Study
2020, HE Léonard de VinciArticle scientifiqueObjective: To assess the face and content validity, acceptability and feasibility of a French version of the Children’s Palliative Outcome Scale (CPOS). Background: Instruments in French used to measure outcomes in pediatric palliative care are lacking. Methods: After forward-backward translation of the 12-item English CPOS to French, we conducted a qualitative pilot study. During semi structured ... -
Please Do Whatever It Takes to End Our Daughter's Suffering!
2015, HE Léonard de VinciArticle scientifiqueWhat is the best way to care for a child with severe neurologic impairment who seems to be dying and is in intractable pain? Can we give sedation as we remove life support? Is it ethically permissible to hasten death? In the United States, 5 states have legalized assisted suicide (although only for competent adults). In Belgium and the Netherlands, euthanasia is legal for children under some ... -
Appropriate care at the end of life
22 décembre 2017, HE Léonard de VinciArticle scientifiqueRapport du KCE sur les conditions de soins du patient en fin de vie -
Efficacy of the Buzzy System for pain relief during venipuncture in children: a randomized controlled trial
2018, HE Léonard de VinciArticle scientifiqueBackground and aim of the work: procedural pain is a significant issue for paediatric patients. In particular, needle pain is amongst the most stressful for children. Studies revealed that a large number of children do not receive adequate pain prevention during the procedures. Neglecting the prevention of needle pain can cause several psychological effects such as anxiety and phobias, and increase ... -
Soins palliatifs en pédiatrie, éthique et relation au patient
2014, HE Léonard de VinciArticle scientifiqueL’extension aux personnes mineures de la loi belge sur l’euthanasie, intervenue courant 2014, pose question au regard des besoins des enfants en contexte de soins palliatifs pédiatriques. Ces besoins concernent essentiellement l’attention portée aux interrelations entre l’enfant, sa famille et l’équipe de soins ainsi qu’au soulagement de la douleur, physique, psychique et spirituelle. Des repères ... -
Does the Belgian law legalising euthanasia for minors really address the needs of life-limited children?
2014, HE Léonard de VinciArticle scientifiqueThe Belgian law on euthanasia for adults was approved in 2002, the same year as laws on patients’ rights and on palliative care, which mostly address the needs of adults. On 13 February 2014, an extension of the euthanasia law that decriminalises euthanasia for children, without age restriction, was approved by the House of Representatives in Brussels (Belgian Ministry of Justice, 2014). In the ... -
D'un passage à l'autre, analogies entre l'accouchement et la mort
2016, HE Léonard de VinciArticle scientifiqueIl existe des analogies troublantes entre le début et la fin de la vie d’un enfant. L’hypothèse d’une similitude de la problématique de la naissance et de la “mourance” de l’enfant permet une réflexion sur l’accompagnement en contexte de soins palliatifs pédiatriques. -
Des soins palliatifs intégrés
2017, HE Léonard de VinciArticle scientifiqueSymposium EAPC sur la démarche palliative intégrée. -
The Belgian euthanasia law and its impact on the practises of Belgian paediatric palliative care teams
2018, HE Léonard de VinciArticle scientifiqueThis commentary describes the effect of the Belgian euthanasia law extended to children law on the practices of two paediatric liaison care teams in Belgium (one in Flanders, one in Wallonia). Ethical challenges are discussed based on clinical experiences of those teams, who affirm that in 25 years of practice, they were never confronted with a child requesting euthanasia. -
Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014
2018, HE Léonard de VinciArticle scientifiqueBACKGROUND: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's implementation is challenging. In Belgium, five paediatric liaison teams (PLTs) deliver palliative care. A Royal Decree issued in 2010 provides the legal framework that defines the PLTs' missions, as ensuring continuity of curative and palliative care between ... -
Recensement d'un nombre d'enfants atteints d'une maladie chronique complexe en région de Bruxelles-Capitale (rapport final)
2018, HE Léonard de VinciArticle scientifiqueRapport et recensement du nombre d'enfants atteints de MCC en région Bruxelles-Capitale. -
Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review
2019, HE Léonard de VinciArticle scientifiquePediatric palliative care (PPC) is intended to promote children's quality of life by using a family-centered approach. However, the measurement of this multidimensional outcome remains challenging. To review the instruments used to assess the impact of PPC interventions. Five databases (Embase, Scopus, The Cochrane Library, PsychInfo, Medline) were searched. Inclusion criteria were as follows: ... -
Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgium
2019, HE Léonard de VinciArticle scientifiquePaediatric complex chronic conditions (CCCs) are life-limiting conditions requiring paediatric palliative care, which, in Belgium, is provided through paediatric liaison teams (PLTs). Like the number of children and adolescents with these conditions in Belgium, their referral to PLTs is unknown. Objectives: The aim of the study was to identify, over a 5-year period (2010–2014), the number of children ... -
La qualité de vie des enfants en contexte palliatif, comment la documenter? Peut-on la mesurer?
2019, HE Léonard de VinciArticle scientifiqueLes soins palliatifs pédiatriques visent à promouvoir la meilleure qualité de vie des enfants. Cependant, mesurer cette qualité de vie, qui est un construit hautement subjectif et multidimensionnel, est complexe car il faut tenir compte de l’hétérogénéité des maladies, des âges, des trajectoires de soins ainsi que des types d’interventions. Actuellement, la plupart des instruments de mesure ne ... -
Belgian End-Of-Life Care Study Did Not Include French-speaking Units
2020, HE Léonard de VinciArticle scientifiqueDear Editors, We have read with interest the article by Dombrecht et al. (2019) published in your journal in its edition of March 2019. The authors address a sensitive topic, namely the reported attitudes of neonatologists and neonatal nurses in the Flanders region of Belgium regarding complex issues around active end-of-live (EOL) practices for foetuses and neonates facing life-limiting conditions. ... -
Quel accès aux soins palliatifs pour les enfants porteurs d'une maladie chronique complexe en Belgique?
2020, HE Léonard de VinciArticle scientifiqueLes maladies chroniques complexes (MCC) sont définies comme étant des conditions médicales avec une atteinte systémique sévère, nécessitant le recours à des hospitalisations pédiatriques et limitant l’espérance de vie (Feudtner et al., 2000). Une étude européenne (Håkanson et al., 2017) suggère que plus d’un tiers des enfants décédés en Belgique en 2008 l’étaient à cause de MCC. Les recommandations ... -
Un dispositif pédagogique out of the box pour encourager la collaboration interdisciplinaire/interprofessionnelle?
2020, HE Léonard de VinciArticle scientifiqueDes séminaires interdisciplinaires réunissent, depuis 2006, à l’initiative de la Haute École Léonard de Vinci (Bruxelles, Belgique), des étudiants de 3e année en soins infirmiers et des étudiants de 5e année en médecine. L’objectif est d’encourager ces étudiants au processus de délibération éthique, tout en déconstruisant les stéréotypes véhiculés entre disciplines. Les résultats issus des autoévaluations ... -
Proposition d’un modèle fonctionnel de la continence pour le diagnostic et la rééducation de l'incontinence urinaire à l'effort A proposed functional model for stress urinary incontinence diagnosis and rehabilitations
2009, HE Léonard de VinciArticle scientifiqueArticle scientifique -
Functional Bladder and Bowel Problems: How to Treat Them?
04 février 2018, HE Léonard de VinciArticle scientifiqueIn order to achieve urinary and faecal continence an efficient control on both systems is necessary, which means equilibrium between the two important phases of each system: storage and emptying. This implicates not only control of the pelvic floor muscles (contraction and relaxation) but also a correct interpretation of the sensorial information during both functional alternative phases leading ...